Cockayne Syndrome is a rare genetic disorder causing rapid aging in children.
Currently, there is no treatment for CS.
This disorder is difficult to diagnose, often resulting in exhaustive testing with no answers.
This page was created in order to give photographic reference for some common CS symptoms, to help those who may be seeking a diagnosis and to raise awareness of this rare disease.
My son (currently 34 months old) was diagnosed with severe CS at 8 months old. The maximum life expectancy is around 5 yrs. He has several symptoms of CS.
In the above photo collage, the premature aging caused by the disease has already become apparent.
Other signs of CS that he has are:
A child with Cockayne Syndrome may only have a few of these symptoms, and they are seen in differing degrees from child to child. To see a list of more physical signs associated with CS, along with photos of other children, click here.