Category Archives: Baby Knox
Photos from the CS Retreat, Liverpool, and New Brighton
I flew over to England with Knox for the annual Cockayne Syndrome family conference. It’s put on by the CS support group, Amy and Friends, and helps connect families from all over the world who have children with this rare … Continue reading
Filed under Baby Knox, Pictures I Take
Painting for the Children’s Hospital
Remember my sketches for the children’s hospital? I’ve been working on the painting a little here and a little there. And I’m FINALLY done! Here are some of the photos I took during my progress. My studio is anywhere I … Continue reading
Published in Artful Blogging, Fall 2012
What a cool birthday present. I came home from California and saw my blog published in Artful Blogging, just in time for my birthday on Sunday. Now that’s better than a big piece of cake! Thank you to editor, Jennifer … Continue reading
Happy 2nd Birthday Knox!
My sweetie pie, Knox, turned 2 this last weekend! He stared at his cupcake… And then tried a little bit of the sweet stuff… We had lots of fun celebrating with family. He shares a birthday with his Great-Grandmother. He … Continue reading
Filed under Baby Knox
One Year Since Diagnosis
It’s been a little over a year since I found out that my baby boy is rapidly aging. This disease called Cockayne Syndrome is the worst thing I’ve ever seen. A fellow CS mother posted the question on FB recently, … Continue reading
