Baby Knox

In April 2011, our baby boy was diagnosed with a rare genetic disease called Cockayne Syndrome.

Baby Knox

Happy 5th Birthday, Knox

Knox is celebrating his 5th birthday in Heaven today, and we miss him. We were priveleged to attend the release of 130 newly hatched Kemp’s Ridley sea turtles early yesterday morning.  A crowd gathered along the Padre Island National Seashore and volunteers stood ready to keep the babies safe from seagulls. More […]

Baby Knox

One Child Crying

My son died in bed beside me.  I have no words to describe this. He was 3 and a half years old. Later that morning, his nurse washed and dressed him.  After holding him for 9 days while his body shut down, I was unable to perform this final task. […]