Knox has been gone for 3 months now and there’s one thing I want to do. I want to tell YOU about him. And YOU. and YOU. And everyone else. I want to tell you about my sweet little boy who was just here a few weeks ago. He was […]
Baby Knox
In April 2011, our baby boy was diagnosed with a rare genetic disease called Cockayne Syndrome.
Healing Wind
The inspiration for this painting came from the lines from Richard Aldington’s poem: “O Death, Thou art an healing wind That blowest over white flowers…” Once again, my friend found a large canvas in a dumpster. This is how it looked when he found it. It’s 24” x 48″. […]
Butterfly Made from Dried Flowers
One Month Without Knox
There were 5 diapers left in his diaper basket. There were 28 medicine syringes left in the kitchen drawer. I have received 122 sympathy cards. And all the flowers have wilted. In the morning, I wake up and set things up as if he was still here. I lay his […]
One Week Without Knox
It’s been one week since I buried my son. I’m trying to adjust to life without Knox and trying to make sense of the last 3 weeks. At this point, I feel as if I don’t care about anything. It’s understandable, I think. If I live, fine. If I […]
Knox Went to Heaven
My baby is gone. My little Knox had been battling a double ear infection over the last month. None of the antibiotics worked. Then he caught a respiratory virus (RSV) on top of it all, and his body wasn’t strong enough. He spent the last 5 days of his […]
“Love Has Wings” Student Documentary
My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~
Published in Somerset Studio Jan/Feb 2014
I’m surprised and delighted to see my Bandit Girl and the Ladybugs paintings( I, II, and III) featured in the current issue of Somerset Studio! My heart-felt thanks, once again, to the editors over at Stampington for including my work. Be sure and check out the current issue at your […]
Amy and Friends CS Retreat 2013
We traveled over to North Wales last week to attend our second Amy and Friends Annual Cockayne Syndrome Family Conference. My son, Knox, has a severe form of Cockayne Syndrome. It’s a terminal condition that is causing him to age faster than normal. Instead of growing, gaining weight, and reaching […]