Baby Knox

In April 2011, our baby boy was diagnosed with a rare genetic disease called Cockayne Syndrome.

Baby Knox

Happy 2nd Birthday Knox!

My sweetie pie, Knox, turned 2 this last weekend! He stared at his cupcake… And then tried a little bit of the sweet stuff… We had lots of fun celebrating with family. He shares a birthday with his Great-Grandmother. He turned 2 and she turned 83… Then just a couple […]

Baby Knox

Visual Contrast Book for Baby

I recycled this old photo album into a visual contrast book for Knox. We’re not sure how much he can see, but we know he sees something! And he seems to enjoy looking at high contrast images.  The Baby Symbolizer app. keeps him entertained for a while, but real books […]