For Elias

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This piece was made by finger-painting on Bristol vellum and then cutting the pieces out by hand.  The background was made by dragging a piece of cardboard through the leftover paint on the palette, and then swiping it across the paper in an upward motion. I uploaded the photo to Ribbet and edited it.

This design was made in memory of a special little boy from Finland, who had Cockayne Syndrome.

To see many more projects and photos, like my FB page.  This design is part of a set I’m currently working on to sell for medical research in Knox’s Etsy shop. Thanks for stopping by!

For Elias 2015

Happy Birthday Knox ~ 4 Gifts Given and Received

Happy Birthday to my little son in Paradise.  Knox would be 4 years old today.

I think the hardest part is not being able to say “I love you”; not being able to hold him.

He’s been gone 5 and a half months.  I miss him terribly.

Giving gifts of love, in honor of Knox’s birthday, was the only way I could think of to say “I love you”.

First, I went to the store and picked out what I would’ve bought him if he was here.  I associate baby turtles with Knoxy because of a painting I made for him that hung above his crib.

I’m sending these clothes to a precious little boy with severe CS here in the USA,  and another identical set to a little boy with CS in England.  I love you, Knox.

Then I painted a bright turtle for a little girl with CS, also here in America.  I’ll include the process photos and finished piece in the next post. I hope she likes it!

Next, I made a new set of cards and listed them in Knox’s Etsy shop. I’ll continue to make and sell butterfly cards and other original art pieces online to support Amy and Friends CS Support in the UK.  Please visit the shop and pass on the link.  All proceeds are donated. I made a donation last week of $150 from card sales. Thank you to everyone who buys the butterfly cards!

I donated the recent proceeds from Knox’s shop to CS research through Amy and Friend’s “JustGiving” site. If you’d like to make a donation in honor of Knox’s 4th Birthday, please leave a note in the message box so I can thank you.  <3

Finally, I made a donation of books to Dell Children’s Hospital.  Knox loved books!  It’s so nice to have good books to borrow while you’re in the hospital.  I wish I was in the hospital reading a book to Knox now.

I have been given four gifts, as well. I received this gorgeous bracelet from another CS mom right here in Texas.  I absolutely love it!

 

A young artist friend of mine presented me with an amazing graphite drawing of Knox.  I loved it so much I posted it on my FB page. I know how difficult portraits are and how much time it takes to make an accurate likeness.  Thank you so much Miss E. J.! See her wonderful drawing of Knox here.  What a special gift!

Third, a friend sent me a poem he wrote about Knox.  The day it was sent to me, I had been asking the very same question presented in the title:

How Has the World Not Stopped?                                                        (2/11/14)
But I now know
that nothing
escapes a black hole.
That gravity pulls,
slowly at first,
then faster and faster
until the frail shell protecting us
collapses,
and air
no longer
surrounds us
and we are crushed.
Within the heart
of this heaviness
time ceases to exist.
The normal flow of life
is torn on the tiniest snag of circumstance
into spirals of endless repeating memories.
Eventually we’ll be spit out
into an alternate universe,
that expects us to live
as if you no longer exist
and only pities us
when we cling
to the warmth
of your presence.
The strangest part
is
that for those whose path arcs
far
from your massive absence,
life
seems unchanged.
Except,
perhaps,
for a sense of relief
at barely
having
escaped.
(c) 2014  Elwood Fischer

Thank you for this gift, Elwood.  The words are meaningful and I’m blessed.

And the fourth gift was a video.  Knox’s grandmother sent me a video she found on her iPhone of Knox’s first few moments of life. I was struck to the heart with sorrow to see Knox as a newborn again and to hear his cry.  I remember thinking how beautiful he was, and at the same time, there was a feeling of incongruity in the room that I remember, as well.  It didn’t feel like there was anything specifically wrong with Knox in that moment, but something suddenly seemed wrong with life itself.  I still don’t understand it.   The video is hard to watch but it’s a gift I wouldn’t trade.

Happy Birthday my sweet angel ~ I hope you and your Great-Grandmother are enjoying your shared birthday together today and having a wonderful time.

 

Knox,  we love you!

Published in Somerset Studio Jan/Feb 2014

I’m surprised and delighted to see my Bandit Girl and the Ladybugs paintings( I, II, and III)  featured in the current issue of Somerset Studio!  My heart-felt thanks, once again, to the editors over at Stampington for including my work.

Be sure and check out the current issue at your local bookstore.  Here in central Texas they can be found in Barnes and Noble bookstores and they are also carrying them in Michael’s stores!

And speaking of Somerset Studio, the current challenge for Jane Austen inspired art is due by Feb. 15th. I know there are many of you out there who create beautiful work (I see your blogs!) and have never gotten up the nerve to submit your work for publication.  Let 2014 be the year you put yourself out there!  Create, send it in, and see what happens!

I’ve got some sweet “Thinking of You” cards I just added to Knox’s Etsy shop. Remember all proceeds from his little shop go to CS research and to the aid of families with a child suffering from this syndrome.  Check out Amy and Friends for more information on the charity I support with these funds.

 

And now for a bit about my Knox.  The hard truth is he’s been declining since his 3rd birthday last July. He was hospitalized twice recently, once in late October for dehydration and then immediately following for his first case of pneumonia.  He has been weakened by illness and is now becoming ill frequently. Over the last 3 months he’s lost weight and now weighs a mere 12 pounds, 10 ounces.  He continues to eat well by mouth but his body does not absorb the calories.  Today, he is recovering from an ear infection he developed last week and is finally feeling better.

We had the chance to attend a special birthday party in December!  Knox’s little friend, Miss A., who also has severe Cockayne Syndrome, turned 2 years old and we had a wonderful time celebrating with her family.  As far as we know, Knox and Miss A. are currently the only children in Texas with CS2.

For those of you that have been following my blog for a while, I appreciate your prayers and kind thoughts on our behalf.  This road is getting harder.  The company I keep each week includes Knox’s nurse, his therapist, and the hospice staff.  I’m thankful for them.  Maybe I’ll write more about Knox later, but right now this is all I feel I can share.

Don’t forget to click over to my FB page and like it! I don’t have as much time to blog as I used to, but I try and post on the FB page every other day or so.  I’m also in Instagram as scarlettclay.

Up next: Lunchbox Love Notes

Thanks for stopping by and Happy New Year!

 

 

 

New Butterfly Cards for Cockayne Syndrome

I make cards to raise money for medical research.

I stamp, color, cut, layer, and glue. Then I cut some more.

I sell these cards in my little boy’s Etsy shop, and then send all the proceeds to fund Cockayne Syndrome research.

Please pass along the link to Knox’s shop! I would love to sell out of cards this month and have to go out for more supplies!

 

 

Thanks for stopping by and have a wonderful Labor Day weekend!

You can see these new cards sets in Knox’s shop Cards for Cockayne Syndrome,and be sure and like my FB page to see postings of works in progress, daily sketches, and other creative endeavors.