My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~
Tag: aging disease
Amy and Friends CS Retreat 2013
We traveled over to North Wales last week to attend our second Amy and Friends Annual Cockayne Syndrome Family Conference. My son, Knox, has a severe form of Cockayne Syndrome. It’s a terminal condition that is causing him to age faster than normal. Instead of growing, gaining weight, and reaching […]