I just added some NEW cards to Knox”s little Etsy shop. I began the shop to raise money for medical research back in 2011 and have kept it going in Knox’s memory, and in honor of all the beautiful children with Cockayne Syndrome around the world. These cards are really […]
Tag: amy and friends
Happy Birthday Knox ~ 4 Gifts Given and Received
Happy Birthday to my little son in Paradise. Knox would be 4 years old today. I think the hardest part is not being able to say “I love you”; not being able to hold him. He’s been gone 5 and a half months. I miss him terribly. Giving gifts of […]
“Love Has Wings” Student Documentary
My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~
Published in Somerset Studio Jan/Feb 2014
I’m surprised and delighted to see my Bandit Girl and the Ladybugs paintings( I, II, and III) featured in the current issue of Somerset Studio! My heart-felt thanks, once again, to the editors over at Stampington for including my work. Be sure and check out the current issue at your […]
Amy and Friends CS Retreat 2013
We traveled over to North Wales last week to attend our second Amy and Friends Annual Cockayne Syndrome Family Conference. My son, Knox, has a severe form of Cockayne Syndrome. It’s a terminal condition that is causing him to age faster than normal. Instead of growing, gaining weight, and reaching […]