Tag Archives: butterflies
Altered Travel Folder
I took a plain manila folder and altered it for our upcoming trip. I’m taking Knox to the UK f0r an annual retreat held for families with children affected by Cockayne Syndrome. This will be our first time to attend … Continue reading
Filed under Altered Art, Art Stamping
Mosaic Butterflies for CS Research
Check out these gorgeous donations to Knox’s Etsy shop for CS research! My friend, Floy, is an amazing bead and mosaic artist here in central Texas. Check out more of her work! You can see more … Continue reading
Filed under Cards for Cockayne Syndrome
Miniature Hot-Air Balloon Christmas Ornament (#2)
This hot-air balloon started with an old tennis ball from the garage. And this bottle cap. I wrapped the tennis ball in some white cotton cloth and tied it with a rubber band. Then I painted it all over with … Continue reading
Filed under Christmas Time
Starting A Memory Album
I love Knox so much. Losing him doesn’t seem possible… He had his first ear infection last week but he’s feeling better now. His intake went critically low, but he managed to stay hydrated and has managed to take in … Continue reading
Butterfly Cards for Cockayne Syndrome
Just finished up this set of butterfly cards for my Etsy shop for CS Research. Knox is doing better! He sure gave us a scare last week as his intake fell to barely 8 ounces a day. Thankfully, his appetite … Continue reading
Filed under Cards for Cockayne Syndrome




















