Tag Archives: cockayne syndrome

“Girl with Opera Glasses”, after Degas

I started this painting 4 months ago.  It’s called “Girl with Opera Glasses” by Edgar Degas. I sketched it onto a canvas that a friend of mine found in a dumpster.  The things people throw out! It already had a … Continue reading


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One Month Without Knox

There were  5 diapers left in his diaper basket. There were 28 medicine syringes left in the kitchen drawer. I have received 122 sympathy cards. And all the flowers have wilted. In the morning, I wake up and set things … Continue reading


Filed under Baby Knox

One Week Without Knox

  It’s been one week since I buried my son. I’m trying to adjust to life without Knox and trying to make sense of the last 3 weeks. At this point, I feel as if I don’t care about anything. … Continue reading


Filed under Baby Knox

Knox Went to Heaven

  My baby is gone. My little Knox had been battling a double ear infection over the last month. None of the antibiotics worked. Then he caught a respiratory virus (RSV) on top of it all, and his body wasn’t … Continue reading


Filed under Baby Knox

“Love Has Wings” Student Documentary

  My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~  


Filed under Baby Knox