Happy Birthday to my little son in Paradise. Knox would be 4 years old today. I think the hardest part is not being able to say “I love you”; not being able to hold him. He’s been gone 5 and a half months. I miss him terribly. Giving gifts of […]
Tag: cockayne syndrome
The Dead Dove
When people see this image they respond in different ways. Some have said it’s a photograph full of sadness, that it’s hard to look at. Some say it’s foreboding, an ill omen of days to come. Other are more pragmatic: The dove flew into the window and fell down dead. […]
“3 Seconds”
Knox was here with us for over 3 years, but sometimes it feels more like 3 seconds. The time was so short. Acrylic on Canvas, 24″ X 12″.
Healing Wind
The inspiration for this painting came from the lines from Richard Aldington’s poem: “O Death, Thou art an healing wind That blowest over white flowers…” Once again, my friend found a large canvas in a dumpster. This is how it looked when he found it. It’s 24” x 48″. […]
“Girl with Opera Glasses”, after Degas
I started this painting 4 months ago. It’s called “Girl with Opera Glasses” by Edgar Degas. I sketched it onto a canvas that a friend of mine found in a dumpster. The things people throw out! It already had a thick, ivory coat of paint on it. Look! There’s Knox […]
One Month Without Knox
There were 5 diapers left in his diaper basket. There were 28 medicine syringes left in the kitchen drawer. I have received 122 sympathy cards. And all the flowers have wilted. In the morning, I wake up and set things up as if he was still here. I lay his […]
One Week Without Knox
It’s been one week since I buried my son. I’m trying to adjust to life without Knox and trying to make sense of the last 3 weeks. At this point, I feel as if I don’t care about anything. It’s understandable, I think. If I live, fine. If I […]
Knox Went to Heaven
My baby is gone. My little Knox had been battling a double ear infection over the last month. None of the antibiotics worked. Then he caught a respiratory virus (RSV) on top of it all, and his body wasn’t strong enough. He spent the last 5 days of his […]
“Love Has Wings” Student Documentary
My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~