I’m surprised and delighted to see my Bandit Girl and the Ladybugs paintings( I, II, and III) featured in the current issue of Somerset Studio! My heart-felt thanks, once again, to the editors over at Stampington for including my work. Be sure and check out the current issue at your […]
Tag: cockayne syndrome
Amy and Friends CS Retreat 2013
We traveled over to North Wales last week to attend our second Amy and Friends Annual Cockayne Syndrome Family Conference. My son, Knox, has a severe form of Cockayne Syndrome. It’s a terminal condition that is causing him to age faster than normal. Instead of growing, gaining weight, and reaching […]
Need Cards?
There are some bright and colorful Valentine cards in Knox’s shop right now… And some pretty French inspired Valentines, too… There’s a blank set of 4 butterfly cards for all occassions… And some beautified kraft tags…. There’s a set of 4 little owl Valentine cards, as well… Please consider purchasing […]
Published in Artful Blogging, Fall 2012
What a cool birthday present. I came home from California and saw my blog published in Artful Blogging, just in time for my birthday on Sunday. Now that’s better than a big piece of cake! Thank you to editor, Jennifer Taylor, and everyone at Artful Blogging for including me in […]
One Wish
Painted Butterfly Luggage Tag
Does this luggage tag say ‘fun and adventure’ to you? Nope, I didn’t think so, either. I’m already anticipating lots of fun and adventure as we travel to both worldwide Cockayne Syndrome retreats this summer. The first one’s in California and the second, in North Wales, England. These are special […]
New Butterfly Cards with ‘Sweet Nectar’ Papers
These 2 pretty sets of butterfly cards were just listed in my shop for CS research. I used the bright ‘Sweet Nectar’ designer papers from KC Company on these. The colors are so cheerful and fun! If you know anyone who likes handmade cards or butterflies, or […]
New “Stare Cards” For Cockayne Syndrome
Last summer, I made up some ‘stare cards’ for CS to hand out when I have Knox with me. I have passed out lots of cards in the last few months. Yesterday, some other CS moms expressed interest in these on Facebook. I worked on them all evening, re-working the […]
A Heart in Pain
Several trips to the pediatrician’s office have sent me spiraling. So many bad memories in that office. To make matters worse, I also have guilt. In anger I’ve lashed out at some of the nurses. I’m sorry.”No! I said I’m not going to undress him.It’s cold in here and I […]