Tag: cs research

Baby Knox


This is one of my favorite pictures because it’s a picture of LOVE. Knox, on the right, is my special little angel with Cockayne Syndrome. Currently, there are about a dozen children with his type of CS in the United States. His big brother adores him and wants his picture […]

Cards for Cockayne Syndrome

Butterfly Cards

This set of 4 hand-made butterfly cards are blank inside and available at my Etsy shop, Cards for Cockayne Syndrome. All proceeds are sent to Children’s Hospital, Boston, where Dr. Edward Neilan and his team are working toward a treatment for CS. I just got this nifty stamp from Office […]