Knox was here with us for over 3 years, but sometimes it feels more like 3 seconds. The time was so short. Acrylic on Canvas, 24″ X 12″.
Tag: CS2
One Month Without Knox
There were 5 diapers left in his diaper basket. There were 28 medicine syringes left in the kitchen drawer. I have received 122 sympathy cards. And all the flowers have wilted. In the morning, I wake up and set things up as if he was still here. I lay his […]
One Week Without Knox
It’s been one week since I buried my son. I’m trying to adjust to life without Knox and trying to make sense of the last 3 weeks. At this point, I feel as if I don’t care about anything. It’s understandable, I think. If I live, fine. If I […]
Knox Went to Heaven
My baby is gone. My little Knox had been battling a double ear infection over the last month. None of the antibiotics worked. Then he caught a respiratory virus (RSV) on top of it all, and his body wasn’t strong enough. He spent the last 5 days of his […]
“Love Has Wings” Student Documentary
My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~
Amy and Friends CS Retreat 2013
We traveled over to North Wales last week to attend our second Amy and Friends Annual Cockayne Syndrome Family Conference. My son, Knox, has a severe form of Cockayne Syndrome. It’s a terminal condition that is causing him to age faster than normal. Instead of growing, gaining weight, and reaching […]
Published in Artful Blogging, Fall 2012
What a cool birthday present. I came home from California and saw my blog published in Artful Blogging, just in time for my birthday on Sunday. Now that’s better than a big piece of cake! Thank you to editor, Jennifer Taylor, and everyone at Artful Blogging for including me in […]
One Wish
A Shadow Lurking
All the festivities of the season aren’t able to keep away this melancholy. It comes and goes. I’m working on some miniature hot-air balloon ornaments that are turning out really cool so I’ll be sharing those soon. But not today. This month is already proving to be more difficult […]