Tag Archives: genetic disorder

March 30, 2012

One Wish

Filed under Baby Knox, Digital Art, Drawings

Tagged as cockayne syndrome, colored pencils, CS2, digital art, dna strands, fairy godmother, genetic art, genetic disorder, layered dna, layered images, magic wand, original art, pencil sketch, rare genetic disorder

February 23, 2012

New “Stare Cards” For Cockayne Syndrome

Last summer, I made up some ‘stare cards’ for CS to hand out when I have Knox with me. I have passed out lots of cards in the last few months. Yesterday, some other CS moms expressed interest in these … Continue reading →

15 Comments

Filed under Baby Knox, Cards for Cockayne Syndrome

Tagged as amy and freinds, butterfly design, cockayne syndrome, genetic disorder, hand drawn butterflies, stare cards, stare cards for cs

February 11, 2012

A Heart in Pain

Several trips to the pediatrician’s office have sent me spiraling down again. So many bad memories in that office. To make matters worse, I also have guilt. In anger I’ve lashed out at some of the nurses there. “No! I … Continue reading →

29 Comments

Filed under Baby Knox, Drawings, Pictures I Take

Tagged as cockayne syndrome, dealing with terminal illness, degenerative disease in children, DNA repair disease, genetic disorder, photography, using art to cope

January 29, 2012