Tag Archives: hand drawn butterflies
New “Stare Cards” For Cockayne Syndrome
Last summer, I made up some ‘stare cards’ for CS to hand out when I have Knox with me. I have passed out lots of cards in the last few months. Yesterday, some other CS moms expressed interest in these … Continue reading
Filed under Baby Knox, Cards for Cockayne Syndrome
Starting A Memory Album
I love Knox so much. Losing him doesn’t seem possible… He had his first ear infection last week but he’s feeling better now. His intake went critically low, but he managed to stay hydrated and has managed to take in … Continue reading
