This is one of my favorite pictures because it’s a picture of LOVE.
Knox, on the right, is my special little angel with Cockayne Syndrome. Currently, there are about a dozen children with his type of CS in the United States.
His big brother adores him and wants his picture taken with him all the time. He doesn’t see the “look” of CS in his baby brother’s face. He doesn’t notice that Knox is different in any way.
Watching my big boy love on his special brother makes me want to embrace others with differences the way he does.
I haven’t been making much this week. Knox is not eating well and I’m devoting most of my waking hours to keeping him off of a feeding tube. Hopefully, he’ll get his appetite back soon.
My kids have been making a puppet theater out of cardboard boxes these last few days. It’s turning out pretty cool so I’ll be sharing photos of that soon.
Have a blessed week. ~Scarlett
Hi Scarlett .. blissful photos and just so wonderful to read about the boys. There are only 12 with Knox’ type of CS .. that is very challenging .. but I can see you all doing your absolute best for Knox. Love is all.
My thoughts are with you .. with blessings and peace – Hilary
I love the look in your big boy’s eyes~ You captured it well~ I hope n’ pray Knox will get his appetite back; You all are in my thoughts n’ prayers~
Precious boys~xXx
Precious! We’re praying for his appetite, and for rest for you.
Oh, what a beautiful picture – and what a proud big bro! Good luck with the last flings of Summer and please do show that puppet house when you can, xoxo