My oldest daughter made this short documentary on Knox’s rare syndrome.
I’d love for you all to watch it, and if you’re able, leave her some words of encouragement
~Thank you~
My oldest daughter made this short documentary on Knox’s rare syndrome.
I’d love for you all to watch it, and if you’re able, leave her some words of encouragement
~Thank you~
🙂 🙂
Beautifully done! You and your Mom are so talented. We are all so blessed by you sharing your gifts and your family’s journey. Miss you all. Much love and prayers.
@Ramona ~~Thanks so much, appreciate your kind words! Miss you, too!
Bravo Madelaine, This is so beautifully done. Thank you for showing the world about Knox and children like him. You asked for a reason… there are plenty. to be understood, to love freely and to bring these children together so they can feel the same amount of love and happiness they have given.
God bless you and your family and all the families.
Such beautiful smiles on children and family. The knowing and feeling of true love these little “joy givers” have.
Thank you again so very much.
@Karen ~~ Appeciate this comment so much! Thank you for taking the time to leave these sweet words for M. Many blessings to you and your family!
BREATH TAKING! Awesome video Madelaine.
You did a great job! The whole world should look at it!
So, So Proud of You. Standing Ovation – AMAZING. I am telling everyone to watch my GREAT, GRAND – JUST PLAIN WONDERFUL NIECE’s film. So, So Proud of You!! Love truly does have wings.
Love You Forever and Then Some.
Hi Madelaine and Scarlett – what a wonderful film .. I loved the way you put it together, the areas you covered: the children, the parents, the doctors and the effects the disease can have on you as families.
You had some wonderful wise words here appropriate for many … while I think about this after my first viewing … your comment re dying – it comes quickly and is unexpected, albeit it is expected … and made me think of my mother – yes she was 91 … but similar circumstances – when her death came it was a surprise … that adjustment took its time to ‘accept’ her death had happened.
The reason why … is always a difficult challenge … again I relate to my mother’s 5.5 years of terminal bed-bound illness … and then the light comes and we realise that each moment is precious and now is the time to appreciate each and every moment …
… your wording in the film with your friends, your support group, your family are so so true to read for many of us at all walks in life … if only we can realise something of the why …
I hadn’t realised the why for the terminology of ‘butterflies’ or that it was so apposite …
Incredible film Madelaine … very well done … and yet another reason or two or three in the scheme of things … you’ve used your talents to enlighten many of us …
I am thinking on this … in the meantime it was a real privilege to meet you, Knox, your mother, Scarlett, and sister at the UK retreat this year …
Congratulations on this film .. it is very good indeed!! Big hugs – Hilary
I have watched every moment of this beautifully created documentary and learned a lot. Thank you Madelaine and Scarlett for sharing your story and the stories of so many whose lives are touched by CS. Butterflies…beautiful priceless butterflies…children of this world…so precious and priceless. My heart has been touched…
You told a beautiful story about a horrible thing. And you are so right! We all tend to forget how blessed we are. It is true that every cloud has a silver lining, we just have to take the time to look for it. I have a daughter that has Downs Syndrome, she is 39 years old, she seems to be the common thread that holds our family together no matter what is going on. She is always that calm in the middle of a storm. God bless you and your family.
Scarlett and Madelaine, I happened to be looking at Scarlett’s art and then saw the references to Knox and your documentary. I am so very touched by this film – Madelaine, you are amazing. So beyond your years in understanding and wonder. The love you both have for Knox is so beautiful. I wish I had the opportunity to hug him — such a precious soul. Thank you so much for opening my eyes to this syndrome. I pray that God will take care of you and all the other families who have children suffering from this awful syndrome. God Bless You.
Hi Scarlett,My kids and I have been silent following your blog and love what all you and your kids do. I love the documentary your oldest have made. I must say both your daughters are very talented. Couple of years back when I found your blog and shared Knox with my little kids, they too asked WHY! Our hearts were touched…..
This year for christmas I made the mini books for my kids and they were very excited.
I believe your daughter has found her calling, perhaps as a newsworthy person or journalist. She did a marvelous job sharing the behind the scenes look at lives that matter and are misunderstood! What a wonderful job Madelaine-the love of your precious brother and extended family shines in your work!
Dear Scarlett and Madelaine .. I wanted to share with you – that I’d suggested a blogging friend watch your film to help her through a dramatic event in her family’s life … she said it was exactly as I’d suggested … it gave her peace and understanding, though of course we never really get that – but it helped her enormously … thanks so much – it’s such a brilliantly made film …
With many thoughts – Hilary
Thank you, Hilary! I passed this note on to Madelaine and she thought that was indeed wonderful that her film had helped someone. Thank you for letting us know about this, it’s so encouraging to her and to our whole family, means so much to us!
What an amazing movie. So well done, so thought provoking, so moving.
Thank you for sharing not only your story, but the stories of other families with children having CS. This movie was such a wonderful tribute to all the beautiful souls that were here for such a short while yet left such joy behind.