I wish people would stop staring. I designed some cards to give to people who stare at Knox. It’s happening more and more frequently. People can’t help themselves. Their eyes keep looking over at him. They don’t say anything but their eyes ask the questions loud and clear. “What’s wrong with that baby? Is […]
Recent Posts
“Cards for Cockayne Syndrome”-Etsy Shop Up!
Knox turned 11 months old this last week and we love him more than words can say. But time is not on our side. Already, the physical changes that come with Cockayne’s are becoming more noticeable. My heart hurts to see these changes. His hair is thinning, his eyes are […]
My New Camera Bag from Martilena
Ahhhh…my camera finally has a home. Here’s my perfect new camera bag from Martilena. So much to love about it… * Adjustable padded inserts that create custom-sized compartments for your camera and accessories. *LOTS and lots of useful pockets. *Sturdy constuction and generous padding keep my camera and stuff super […]
Antique Butterfly Postcard
Look what I found! I came across this precious Ellen Clapsaddle postcard in our local antique mall. Oh my goodness, my heart skipped a beat when I saw the tiny butterflies being painted. Being well over 100 years old, the copyright on this image has expired, so you can already guess that I […]
Super Art Friday- “Monet’s Lillies”
We’ve been learning about Monet this week. Here are my two favorite children’s books on Monet: Linnea in Monet’s Garden is my first pick. It’s the story of a little girl who travels to France and learns all about Monet’s life and work. Included are pictures of Monet’s most famous paintings, of […]
She Sees Pain in the Mirror
Some days are better than others.
“She Holds On To Time”
End of School Cupcakes
We made some big yummy chocolate frosted cupcakes to celebrate the end of another school year. My daughter made some toppers for them while we waited for them to cool. Definitely need a new spelling program for next year. Now this is funny. She’s home-schooled. Where’s she going to go? And my personal […]
Butterflies of Denmark
I’ve continued reading about other families who have had children with Cockayne Syndrome. All the stories are hard to read and I always cry. But ignorance is not bliss with this disease. I need to know what to expect so that we can give Knox the best care that we can while […]