I took a plain manila folder and altered it for our upcoming trip. I’m taking Knox to the UK f0r an annual retreat held for families with children affected by Cockayne Syndrome. This will be our first time to attend the conference. It’s going to be a special trip so […]
Tag: amy and freinds
New “Stare Cards” For Cockayne Syndrome
Last summer, I made up some ‘stare cards’ for CS to hand out when I have Knox with me. I have passed out lots of cards in the last few months. Yesterday, some other CS moms expressed interest in these on Facebook. I worked on them all evening, re-working the […]