Two new sets of lovely butterfly cards are in the shop, all proceeds go to medical research for Cockayne Syndrome. The first set has a “Happy Birthday”, “Bless Your Heart”, and a blank one for all occassions. You can purchase these cards for medical research here and a small information […]
Tag: cockayne syndrome
Cockayne Syndrome: A Loving Nature is a Symptom
It was my birthday last month and I received a priceless gift: All the videos from Knox’s life on DVDs! No gift could equal this. In this stage of grief, watching the happy times we had with Knox is a great comfort. I love watching each and every video, […]
Red Poppies, Art for Medical Research
I’m honored to present this lovely painting of brilliant red poppies by Austin based artist, Katrina King. This lovely piece is painted on an 8″x8″ gesso board and is ready to brighten up your day! Many thanks for Katrina for donating this original artwork to Knox’s shop for CS research. […]
“Kill The Disease”-Using a Gun in Art
Photograph: Standard range target, Permanent marker, Glock 43, 9 mm pistol. To learn more about Cockayne Syndrome and how you can help, please visit Share and Care Network (US) or Amy and Friends (UK) for more information. I’ve been thinking about art and media. With all the talk of […]
Little Turtle in a Castle
Last summer, I visited a very special friend of mine in Wales. He has Cockayne Syndrome, like my little Knox did, and he lives in a lovely castle by the sea with his family. I love him very much and painted this turtle painting for him to celebrate the special […]
Happy 5th Birthday, Knox
Knox is celebrating his 5th birthday in Heaven today, and we miss him. We were priveleged to attend the release of 130 newly hatched Kemp’s Ridley sea turtles early yesterday morning. A crowd gathered along the Padre Island National Seashore and volunteers stood ready to keep the babies safe from seagulls. More […]
“Emerge”
Little Turtle With Pink Flower Shell
Here’s the cute turtle I painted for sweet Miss B., a little girl with Cockayne Syndrome here in the USA. Her mom told me she likes pink and cheetah print, so I designed a little turtle just for her. I always think of Knox when I see baby turtles. This […]
Happy Birthday Knox ~ 4 Gifts Given and Received
Happy Birthday to my little son in Paradise. Knox would be 4 years old today. I think the hardest part is not being able to say “I love you”; not being able to hold him. He’s been gone 5 and a half months. I miss him terribly. Giving gifts of […]