Tag: cockayne syndrome
A Shadow Lurking
All the festivities of the season aren’t able to keep away this melancholy. It comes and goes. I’m working on some miniature hot-air balloon ornaments that are turning out really cool so I’ll be sharing those soon. But not today. This month is already proving to be more difficult […]
Starting A Memory Album
I love Knox so much. Losing him doesn’t seem possible… He had his first ear infection last week but he’s feeling better now. His intake went critically low, but he managed to stay hydrated and has managed to take in almost 11 ounces of Pediasure today on his own. I […]
Knox turns 15 months
My little angel, Knox, turned 15 months last week. Yep, his hair is still as crazy as ever! We celebrated by driving to Morgan’s Wonderland in San Antonio. While we were there, we had the opportunity to meet an adorable little girl named Grace. Aren’t they sweet? They aren’t related, […]
“Lady in a Marsh” Sketch
Love
This is one of my favorite pictures because it’s a picture of LOVE. Knox, on the right, is my special little angel with Cockayne Syndrome. Currently, there are about a dozen children with his type of CS in the United States. His big brother adores him and wants his picture […]
Happy First Birthday Knox!
Brightly colored streamers hanging in the windows….I think they were Knox’s favorite party decorations! He was able to see them really well when I opened the blinds. Here’s what I did with the leftover crepe paper rolls. Kinda cute? Happy Birthday Baby Boy! We celebrate the joy you’ve brought into our family and the […]
“Butterflies of Denmark” Post Cards
You may remember the art work I did for the special family in Denmark, in memory of their two precious boys lost to Cockayne Syndrome. I decided to get the design printed onto post cards. They are wrapped up in sets of 10 and listed on my new Etsy shop for Cockayne Syndrome […]
Self-Portrait With Butterflies
One of my favorite Renaissance artists, Albrecht Durer, created many images of himself in his lifetime; his first self-portrait was drawn around age 13. I always enjoy looking at artist’s self-portraits. They can reveal so much without any words at all. (love this one). Many times, self-portraits reveal the artist’s emotional condition and what their situation in […]