Creative Projects

Baby Knox, Drawings

“Stare Cards” for CS

I wish people would stop staring. I designed some cards to give to people who stare at Knox. It’s happening more and more frequently.  People can’t help themselves. Their eyes keep looking over at him.  They don’t say anything but their eyes ask the questions loud and clear. “What’s wrong with that baby? Is […]

Drawings

Butterflies of Denmark

I’ve continued reading about other families who have had children with Cockayne Syndrome. All the stories are hard to read and I always cry. But ignorance is not bliss with this disease. I need to know what to expect so that we can give Knox the best care that we can while […]

Drawings

All The Words You Said

EAT THEM. Yes, YOU. Eat them all. You said,”It’s not God’s will for your baby to be sick.” You said, “Knox will thrive and grow, in Jesus’ name.” You even said God would give him new DNA. You said I needed to CLAIM the promises that are available in Christ    *in order […]