There were 5 diapers left in his diaper basket. There were 28 medicine syringes left in the kitchen drawer. I have received 122 sympathy cards. And all the flowers have wilted. In the morning, I wake up and set things up as if he was still here. I lay his […]
Baby Knox
In April 2011, our baby boy was diagnosed with a rare genetic disease called Cockayne Syndrome.
One Week Without Knox
It’s been one week since I buried my son. I’m trying to adjust to life without Knox and trying to make sense of the last 3 weeks. At this point, I feel as if I don’t care about anything. It’s understandable, I think. If I live, fine. If I […]
Knox Went to Heaven
My baby is gone. My little Knox had been battling a double ear infection over the last month. None of the antibiotics worked. Then he caught a respiratory virus (RSV) on top of it all, and his body wasn’t strong enough. He spent the last 5 days of his […]
“Love Has Wings” Student Documentary
My oldest daughter made this short documentary on Knox’s rare syndrome. I’d love for you all to watch it, and if you’re able, leave her some words of encouragement ~Thank you~
Published in Somerset Studio Jan/Feb 2014
I’m surprised and delighted to see my Bandit Girl and the Ladybugs paintings( I, II, and III) featured in the current issue of Somerset Studio! My heart-felt thanks, once again, to the editors over at Stampington for including my work. Be sure and check out the current issue at your […]
New Butterfly Cards for Cockayne Syndrome
I make cards to raise money for medical research. I stamp, color, cut, layer, and glue. Then I cut some more. I sell these cards in my little boy’s Etsy shop, and then send all the proceeds to fund Cockayne Syndrome research. Please pass along the link to Knox’s shop! […]
Photos from the CS Retreat, Liverpool, and New Brighton
I flew over to England with Knox for the annual Cockayne Syndrome family conference. It’s put on by the CS support group, Amy and Friends, and helps connect families from all over the world who have children with this rare genetic condition. The friendship and love we shared with other […]
Turtle Painting for Knox
I’m FINALLY done! Here are some of the photos I took during my progress. My studio was my bedroom floor… I decided at this point to make a barely perceptible face on the girl. If you walk by and just glance at the painting you’ll never notice it, […]
Published in Artful Blogging, Fall 2012
What a cool birthday present. I came home from California and saw my blog published in Artful Blogging, just in time for my birthday on Sunday. Now that’s better than a big piece of cake! Thank you to editor, Jennifer Taylor, and everyone at Artful Blogging for including me in […]