There are some bright and colorful Valentine cards in Knox’s shop right now… And some pretty French inspired Valentines, too… There’s a blank set of 4 butterfly cards for all occassions… And some beautified kraft tags…. There’s a set of 4 little owl Valentine cards, as well… Please consider purchasing […]
Tag: cockayne syndrome
Published in Artful Blogging, Fall 2012
What a cool birthday present. I came home from California and saw my blog published in Artful Blogging, just in time for my birthday on Sunday. Now that’s better than a big piece of cake! Thank you to editor, Jennifer Taylor, and everyone at Artful Blogging for including me in […]
One Wish
Painted Butterfly Luggage Tag
Does this luggage tag say ‘fun and adventure’ to you? Nope, I didn’t think so, either. I’m already anticipating lots of fun and adventure as we travel to both worldwide Cockayne Syndrome retreats this summer. The first one’s in California and the second, in North Wales, England. These are special […]
New Butterfly Cards with ‘Sweet Nectar’ Papers
These 2 pretty sets of butterfly cards were just listed in my shop for CS research. I used the bright ‘Sweet Nectar’ designer papers from KC Company on these. The colors are so cheerful and fun! If you know anyone who likes handmade cards or butterflies, or […]
New “Stare Cards” For Cockayne Syndrome
Last summer, I made up some ‘stare cards’ for CS to hand out when I have Knox with me. I have passed out lots of cards in the last few months. Yesterday, some other CS moms expressed interest in these on Facebook. I worked on them all evening, re-working the […]
A Heart in Pain
Several trips to the pediatrician’s office have sent me spiraling. So many bad memories in that office. To make matters worse, I also have guilt. In anger I’ve lashed out at some of the nurses. I’m sorry.”No! I said I’m not going to undress him.It’s cold in here and I […]
A Shadow Lurking
All the festivities of the season aren’t able to keep away this melancholy. It comes and goes. I’m working on some miniature hot-air balloon ornaments that are turning out really cool so I’ll be sharing those soon. But not today. This month is already proving to be more difficult […]
Starting A Memory Album
I love Knox so much. Losing him doesn’t seem possible… He had his first ear infection last week but he’s feeling better now. His intake went critically low, but he managed to stay hydrated and has managed to take in almost 11 ounces of Pediasure today on his own. I […]