Tag: cockayne syndrome

Art Cards

Antique Butterfly Postcard

Look what I found! I came across this precious Ellen Clapsaddle postcard in our local antique mall. Oh my goodness, my heart skipped a beat when I saw the tiny butterflies being painted. Being well over 100 years old, the copyright on this image has expired, so you can already guess that I […]

Drawings

Butterflies of Denmark

I’ve continued reading about other families who have had children with Cockayne Syndrome. All the stories are hard to read and I always cry. But ignorance is not bliss with this disease. I need to know what to expect so that we can give Knox the best care that we can while […]

Drawings

All The Words You Said

EAT THEM. Yes, YOU. Eat them all. You said,”It’s not God’s will for your baby to be sick.” You said, “Knox will thrive and grow, in Jesus’ name.” You even said God would give him new DNA. You said I needed to CLAIM the promises that are available in Christ    *in order […]

Baby Knox

Now We Know

 Now we know what’s wrong with baby Knox. His DNA results came back and he has Cockayne Syndrome (Type II). It is a premature aging condition. It’s degenerative and terminal; currently, there are no treatment options available. I knew it was going to be something serious, but deep down, I had still hoped we […]